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Data sharing

The Data Sharing Cockpit

The Data Sharing Cockpit is a personalized management tool that allows you to control the use of your health data. You decide which data can be used by which users for specific research projects and clinical areas.

This gives you the peace of mind that your health information is used responsibly and according to your specifications.

Process

User groups

First, you decide which user groups you want to share your health data with for research and development purposes. All user groups you do not select are excluded from using your data.

Data types

Specify which data types you want to share with which user groups. The user groups you selected in the first step are taken into account.

Clinical area

Determine the areas in which your data can be used. This takes into account the user groups and data types you selected earlier.

Contact

Finally, you can choose whether or not you’d like to be contacted in the future to receive additional information about new treatments, research projects or medical findings.

How can I use the Data Sharing Cockpit?



Currently, you can only grant your data sharing consent in select clinics and in person. Contact us at to find an appropriate contact person in your area.

Availabe soon!
The App

In the future, you’ll be able to share your health data through the Data Sharing Cockpit online or via smartphone app. This lets you decide who can access what health information, step-by-step, at any time. With the app, you will always have your Data Sharing Cockpit with you on your smartphone and will be able to stay up to date on current research projects.

  • Keep complete control over your data

  • Revoke or change your consent at any time

  • Paperless and digital

  • Authentication and secure access management

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How is your data processed?

  1. With the Data Sharing Cockpit, you select which user groups may use certain types of data for defined areas. Then, a technically and organizationally separate trust center assigns a pseudonym that can be used to allocate health data to different service providers.

  2. Your healthcare provider (hospital, specialist, etc.) collects health data during your treatment.

  3. Before your health data is processed externally, your personally identifiable information, such as your name and date of birth, is pseudonymized or removed.

    • The pseudonymized data is transmitted in encrypted form to a data collection body, where it is stored and accessible to authorized users through a digital platform.

    • Researchers can submit a request to use the data. The Data Use and Access Committee, composed of members from different institutions, decides whether or not to grant these requests.

  4. Only after approval are data users granted access to pseudonymized or largely anonymized data via a secure digital process. Care is taken to provide as little personal information as possible.

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Further information

Can your data be used commercially?

The goal of data sharing is to create value for society.

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What happens if you change your mind?

Sharing your data is voluntary and you can withdraw all or part of it at any time.

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What are the risks of sharing your data?

Despite strict privacy and security measures, it is possible for information about you to be obtained from other sources, such as the Internet or social networking...

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You decide how and when to be contacted

Occasionally, it can be beneficial to contact you again later—if you have agreed to this on your consent form, of course. This could happen to provide...

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